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Myeloma Link

Black Americans have twice the incidence of myeloma as white Americans. What's more, studies show that Black Americans are significantly less likely to receive the latest treatments, and are more likely to experience treatment delays.

Clinical Trial Support Center (CTSC)

Finding a clinical trial can be overwhelming. Patients are often left to search on their own, leaving them with more questions than answers. Fortunately, The Leukemia & Lymphoma Society provides a free service to take this burden of patients and families.

Harnessing Social Determinants of Health Insights For Better Patients Outcomes

The report included in this e-Book outlines powerful examples of business, state and community-based initiatives to tackle problems of social determinants of health. While we know true equity is some way off, it is encouraging to see progress.

Clinical Trial Treatment Act: Addressing One Barrier to Inclusive Research

"As of January 1, 2022, Medicaid – one of the largest U.S. health payers – is required in all 50 states to cover routine costs associated with clinical trial participation, bringing parity in insurance coverage for clinical trials among Medicaid enrollees and Americans enrolled in Medicare or private insurance."

Physician Awareness of the Clinical Treatment Act Survey

Concerned by what appeared to be extremely low awareness of the new mandate, Syneos Heath® utilized its AnswerSuite platform to query U.S. physicians across multiple specialties just weeks before it went into effect. Fielded online from December 6-21, 2021, the survey included a brief description of the mandate, three Likert scale questions and one open-ended question. 795 physicians responded.

Genentech: A New Perspective on Health Inequity

September 20, 2020

Inequity in our healthcare system is an urgent issue. For too long, Black, Latinx and other marginalized patients have suffered vastly disparate health outcomes.

Trends in Race and Ethnicity Among Matriculants to US Oncology Training Programs, 2015-2020

October 7, 2021

This study aims to assess underrepresented minority (URM; i.e., Black or African American individuals, Hispanic or Latino individuals, and Native American, American Indian, or Alaskan Native individuals) representation trends across training programs in oncology specialties from 2015 to 2020.

Final SDOH Caucus RFI Response 92121

September 21, 2021

"Feedback from The Pharmaceutical Research and Manufacturers of America (PhRMA) to the Congressional Social Determinants of Health Caucus; on challenges and opportunities related to social determinants of health."

Principles on Conduct of Clinical Trials Communication of Clinical Trial Results

The key issues addressed here are: Protecting Research Participants, Conduct of Clinical Trials, Ensuring Objectivity in Research, Providing Information about Clinical Trials, Expanded Access to Investigational Drugs, Commitment to Enhancing Diversity in Clinical Trial Participation.

Racial and Ethnic Disparities Among Participants in Precision Oncology Clinical Studies

Precision oncology is revolutionizing cancer care, allowing for personalized treatments to improve outcomes. Cancer research has benefitted from well-designed studies incorporating precision medicine objectives, but it is unclear if these studies are representative of the diverse cancer population.

AMA StepsForward Initiative Racial and Health Equity: Concrete STEPS for Smaller Practices

Use this toolkit to identify ways to prepare yourself and your team for conversations about health equity, racial equity, racism, and anti-racism with colleagues, patients, and other practice stakeholders.

Health Equity Grants to Train and Support Community : Health Workers and Patient Navigators in the U.S.

The health equity grantee project aims to harness the power of trusted community members and experts in healthcare navigation, including community healthcare workers and patient navigators, to help ensure equitable access to high-quality care.

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